Sam Berns dies at 17; subject of film about genetic condition progeria - dofaq.com
sam berns

Sam Berns, 17, Public Face of a Rare Illness, Is Dead

New York Times - 14 Jan 2014
Sam Berns, a Massachusetts high school junior whose life with the illness progeria was the subject of a documentary film recently shortlisted for an Academy Award, died on Friday in Boston. He was 17. His death, from complications of the disease, was ...
sam berns

Progeria Teams Raising $$ for Clinical Trial

Rare Disease Report - 08 Jun 2017
The Progeria Research Foundation, founded by Drs Scott Berns and Leslie Gordon, parents of Progeria patient Sam Berns, has completed a clinical study showing the drug lonafarnib, a farnesyltransferase inhibitor, may provide some benefit to progeria ...
sam berns

Sam Berns continues to inspire

The Boston Globe - 22 Feb 2016
In death, as in life, Sam Berns is an inspiration. A TEDx talk the Foxborough high school student gave before his death is one of 15 TEDx talks from around the world being featured by TED as it celebrates reaching 1 billion views. (Sam's talk has been ...
sam berns

Foxborough teen who battled progeria dies

Boston Globe - 12 Jan 2014
Sam Berns was scheduled to serve as an honorary captain at Saturday night's New England Patriots playoff game. Instead, the team planned to hold a moment of silence before the game in his honor. The Foxborough high school student, whose battle with ...
sam berns

A class act in honor of Foxboro's Sam Berns

The Sun Chronicle - 05 Dec 2015
FOXBORO - If there were two words to describe last Saturday's dedication of the memorial garden to Sam Berns on a cool, drizzly afternoon, they would be "love" and "community." "This is truly a labor of love," School Superintendent Debbie Spinelli told ...
sam berns

Living memorial being built as tribute to Sam Berns

WCVB Boston - 10 Sep 2015
Berns would have been a member of the Class of 2015 at Foxborough High School, and his friends are creating a garden near the scoreboard of the Sam Berns Community Field, the Sun Chronicle reported. The garden will have an S-shaped walkway that ...
sam berns

My philosophy for a happy life | Sam Berns | TEDxMidAtlantic

YouTube - 03 Feb 2010
Just before his passing on January 10, 2014, Sam Berns was a Junior at Foxboro High School in Foxboro, Massachusetts, where he achieved highest honors and was a percussion section leader in the high school marching band. He also achieved the rank ...
sam berns

What Did You Read, Watch or Listen to in The Times This Week?

New York Times - 14 Sep 2017
Whatever it was, post a comment here and tell us why you noticed it, or tag us on Twitter (@nytimeslearning) with a photo or a comment. Any teenager from anywhere in the world is welcome to participate, at anytime, until next Thursday. We plan to call ...
sam berns

Sam Berns, an ordinary kid with extraordinary bravery

Boston Globe - 16 Jan 2014
Sam Berns was trapped in a prematurely aging body, but to hear his voice was to be reminded that he was a teenager — with a teenager's syntax, a teenager's interests, and a teenager's sense of possibility. In the opening minutes of “Life According to ...
sam berns

Classmates pay tribute to Sam Berns with memorial garden

Boston.com - 10 Sep 2015
The garden, complete with an “S'' shaped walkway in honor of the young man who became the public face for the rare genetic disease, will be installed near the scoreboard of the Sam Berns Community Field, according to the report. Patriots owner Robert ...
sam berns

For retired school bus drivers, it was not just a job

The Sun Chronicle - 23 Feb 2017
For most of his time in the Foxboro School system, Lincoln was the driver for Sam Berns, a beloved Foxboro student who was the subject of the HBO documentary "Life According to Sam," and who died as a result of the rare aging disease progeria in 2014, ...
sam berns

Rare Diseases – in Honor of Sam Berns

Scientific American (blog) - 14 Jan 2014
Two cases this week highlight some of the difficulties surrounding rare and orphan diseases. First, Sam Berns, age 17, just died from his progressive genetic disease, progeria, which causes very rapid and premature aging. By Judy Stone on January 14, 2014.
sam berns

Foxborough High Senior Gift to Memorialize Sam Berns

Patch.com - 28 Apr 2015
Plans for the memorial call for a garden area along with a plaque at Foxborough High School's Sam Berns Community Turf Field. Given what Berns meant to the community, Sepe said they were aiming to create something that told visitors what he meant to ...
sam berns

Life According To Sam Berns

MedPage Today - 18 Oct 2013
This was the news given to Drs. Leslie Gordon and Scott Berns 13 years ago. Their son Sam was diagnosed with Progeria (sometimes called Hutchinson-Gilford Progeria Syndrome), a rare genetic condition that produces rapid aging in children.
sam berns

Long-lasting tribute to Sam Berns

The Sun Chronicle - 09 Sep 2015
The latest tribute to Foxboro's Sam Berns, who lost his battle with the aging disease progeria at the age of 17 in January 2014, will serve as a lasting living memorial to the always-upbeat young man who would have been a member of the Class of 2015 at ...

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